Airdate: July 30, 2025
Julie Rose: Have you ever felt like a doctor just wasn't listening to you?
Erin Nance, MD: It's really about the communication and the
trust, because I think almost every patient understands that doctors make
mistakes, people get complications, there are risks, but they want their doctor
to be on their team.
Julie Rose: Hey, it's Julie. Welcome to Uncomfy, a show
about sticking with moments that challenge us even when they're uncomfortable. And
I know you're probably wondering, "Why would anybody choose to be
uncomfortable?" But I know from personal experience, and you probably do
too, that sometimes a little discomfort has benefits if we can stay open and curious
about it. And that's what we're here to explore, so let's get Uncomfy.
Julie Rose: I'm joined by Dr. Erin Nance. She's a
board-certified orthopedic surgeon. She's co-host of the Medical Detectives
podcast. She's also CEO and founder of a social media company called FeelBetr
Health. And now, she's adding author to that list with her debut memoir called "Little
Miss Diagnosed: A Surgeon's Guide to Mending Bones and Breaking Rules." Dr.
Nance, welcome. Thanks for making time today.
Erin Nance, MD: Oh, thank you so much for inviting me on
the show.
Julie Rose: So, the first line of your TEDx talk, and
also a major theme in your book, in your podcast, and on TikTok, is that
doctors get things wrong all the time, which is not what I wanna hear as a
patient, but what's it like as a doctor to contemplate that, to, to admit that?
Erin Nance, MD: You know, I think one thing that we have
to acknowledge is that, and this is a, a stolen line from one of my mentors,
but, "The eye only sees what the mind knows," and not every doctor is
created equal, and so when you have a conversation or a consultation with that
doctor, that doctor is coming with their own set of experiences, their own set
of learning and knowledge. So, you know, I, I tell people that you are in a
partnership with your physician and understanding that every physician doesn't
know everything, and sometimes when you don't know everything, you get things
wrong. Um, and it's not that we are intentionally trying to get things wrong
or, or, you know, hurt patients, but we have to understand that each doctor
really does have their kind of specialty, um, and if you feel like you are not
getting the answers that you think you deserve or you think may be missed, then
please start another relationship with another doctor.
Julie Rose: Can you share a story of, um, having to
admit that you don't know or that you got it wrong?
Erin Nance, MD: You know, one of the, you know, chapters
in the book, I write about, and I learned this very early on when I was a
medical student, but bias creeps into everyone's decision making, for good and
for bad. So, this is a, a story about how I was in the psych ward, um, as a
psychiatry medical student, and there was a young woman, she had just, um, had
a baby, and I was introduced to her. She was wearing a J. Crew cardigan, she's
reading, you know, Jane Austen, she, she basically is more put together than I
am, um, and I did not understand why she was there. You know, she was not
acting irrationally, she was not speaking out of turn, she was not, you know,
going off on tangents, and she was there because her family was concerned that
she had unusual behaviors, you know, things like she threw out her wedding
dress, right? Now, most people wouldn't throw out their wedding dress, um,
maybe that's not a normal or typical thing to do, but does that make you worthy
of being admitted to a psych hospital? Um, and so they, she had these kind of
small incidents where, together, you know, they, they formed a larger picture
of something was probably wrong, but to me, all I saw was a really well-behaved
woman who probably was taken away from her newborn, just wants to get back to
her family. Um, and I rotated off that, that service, and it wasn't until
months later when I was grocery shopping, I saw her picture on a tabloid, and
it was the story about how she had eloped from the hospital, she had a
full-blown schizophrenic break, she was suffering from postpartum psychosis.
Um, and I just looked at her staring back at me and thinking, "I got this
so wrong." I was coming up with every excuse to think of, "Like, why
is she here? Like, why are they keeping her, like, against her will? What is,
what is going on?" So, yeah, it was a very early lesson to understand that
we don't know everything, I certainly didn't know anything, and that my bias, I
was giving her too much benefit of the doubt bias because, in the end, she
looked like me, and I thought, "Well, I'm not someone, you know, going
through something like that." And I think, as physicians, we have to
understand that we do have bias and it does influence how we, we treat our
patients.
Julie Rose: And how do you counter that, then, as a
physician?
Erin Nance, MD: I think it's taking an honest assessment
of each patient as an individual. Like, for example, if you are a Black woman
having a baby in America today, you have a 30% chance more likelihood of dying
than a white woman, okay? So, what that means to me is that, and again, I'm a
hand surgeon,
I'm not an OB-GYN, but if I was an OB-GYN, I would be going the
extra mile for my patients who were African-American to make sure I'm listening
even more to their complaints, that I'm not brushing off any of their concerns
because I have to be hypervigilant, right, because this is a vulnerable
population that's at increased risk, and the increased risk is because, as a
system, we are brushing off their pain, their concerns.
Julie Rose: How does this need for humility, for also
acknowledging, "Yeah, I have blind spots, we all have them," how does
that fit in, or does it fit in with the way that doctors are trained to think
about their expertise and to behave in situations like these?
Erin Nance, MD: Well, it's an excellent point because
how we make a diagnosis is through pattern recognition. This goes back to what
we were taught and how we were taught. And if you're a 50-year-old woman and
you walk into the ER and you say, "I'm having some chest tightness and
some difficulty breathing," they're gonna tell you you're having a panic
attack and send you home, versus if you are a 50-year-old male and you go to
the ER and you say, "I'm having some chest tightness and difficulty
breathing," they're gonna give you an EKG, draw labs for troponin to make
sure you're not having a heart attack. Now, the data is very clear: more women
die of heart attacks after the first 30 days than men. But if you close your
eyes and you think, "Who is someone who's having a heart attack?"
It's Mr. Big, right, from Sex in the City, it's that man; you're not thinking
that it's a woman. So, a lot of this is we have to almost unlearn what our own
biases and what the, the established patterns are, and a lot of this goes back
to the fact that women were not even included in research studies until 1993, so
a lot of the research that we have on how women's symptoms may differ is just
so far behind. So, I think the lot of it is, "Do we have the research, the
funding for the research to actually understand how different diseases are
shown in women?"
Julie Rose: What is it about this message that you think
has so resonated with people? Um, you know, this, the, the sort of, you're
preaching this message of like, "Misdiagnoses happen. Um, here are the
reasons why it ha, happens." Why do you think so many people have glommed
onto this, uh, on social media for you?
Erin Nance, MD: I think they're tired. I think they're
tired of going to their doctor and being brushed off. I think they're tired of
having pain and no one listening to them. I think they're tired of being
diagnosed with anxiety and depression when they're really having an autoimmune
disorder. Um, so, to me, I think why people really resonated is that, for the
first time, it's a doctor acknowledging that these problems exist, right? Because
if they talk about it, they're complainers, right? Whereas if I talk about it,
it's, "Oh, well, here's su, someone from inside the system who has some
authority." And the number one comment I get on my social media posts is,
"Thank you. Thank you for finally acknowledging that this exists,"
because that's the, the first step into change is to acknowledge that the
problem exists in the first place.
Julie Rose: Why do you think more doctors aren't
acknowledging it, though? I mean, is it tied to just, like, the attorneys are
telling 'em not to, like, um, you know, if you get charged with, uh, uh, you
know, mistreating someone, right, or malpractice?
Erin Nance, MD: You know, I did a, a post about this a
while ago about how doctors do practice defensive medicine because they're
worried they're going to be sued. I mean, that's, absolutely, 100%. Um, now
this may take a lot of different forms. It may be that they are sending you
for, like, lots of different labs and tests and, and you know, you're confused.
Um, it may be that they will not admit that something went wrong. I mean, I
just had a patient recently who they had a post-op complication that was
apparent from two weeks after the surgery, but it wasn't until six months that
she actually got the diagnosis. And I think part of it is a lot of times the
doctors are putting their head in the sand, right? They don't wanna admit that
something went wrong, when I find that, for most patients, it's really about
the communication and the trust, because I think almost every patient
understands that doctors make mistakes, people get complications, there are
risks, but they want their doctor to be on their team and to manage it with
them. And again, it starts with acknowledging that the problem exists because
if the doctor cannot acknowledge that the problem or the complication exists,
then the patient can't get the help that they need. So, on the one hand you
have doctors, uh, reluctant to admit that they made a mistake, and then there's
also the, the doctor who says, "We've tested everything. Nothing seems to
be wrong. You must be fine, or this is in your head," right, so that
becomes, like, the "medical mystery" that you also talk a lot about.
Julie Rose: Um, and what's interesting to me about the
community that you're building is that you seem to be, um, sort of validating
the crowdsourcing, right? I mean, I would think that a doctor would not be
thrilled to have a patient say, "I know you've tested everything, but what
about this thing that I read on Reddit, or what about this thing that somebody
talked about on social media?" You know, a doctor would say, like,
"Oh my gosh, I don't, you know, I'm the one with the medical degree."
Here you are, a doctor, saying, "Yeah, bring it! Like, more of that,"
right? You even created a social media platform to kind of encourage that. Has
that been an uncomfortable thing for you to embrace?
Erin Nance, MD: Not at all. I kept hearing these stories
from patients who found out about the latest clinical trial for breast cancer,
not from their doctor, but from someone on Facebook who said, "I'm in this
clinical trial in Seattle." And it's, as I said, it's impossible for every
doctor to be up to date with every single disease, the conditions, the
symptoms, the treatments. There are hundreds of research papers published every
day, right? And what I find is that, what I tell patients is, "You know,
your body the best," and patients with lived experience often have a wealth
of knowledge that a doctor will never be able to give you. So, the reason why I
built FeelBetr is, number one, and you can think of FeelBetr as,
like, a modern WebMD, so I wanted a place where it was a safe and trusted place
for people to get health information. Everybody who has a chronic illness is on
Facebook groups, right? Facebook was built as "Hot or Not," all
right, that was the original focus of Facebook, it was never designed to
support communities about health information. So, I wanted to create this safe
and trusted place, and I also wanted to create a place where people knew that
the content was coming from credible health sources because I think the most
dangerous threat to America right now is health misinformation. So, on FeelBetr,
the content is created only by verified either, uh, medical licensed
professionals, health foundations, science-backed health brands and
corporations, but at the same time, so that's the content, but at the same
time, the conversations, we need to include the patients with the lived
experience. And I believe that if we create a place where both physician
expertise and patient lived experience is accessible and equally valued, you're
able to understand, "Okay, this is a informational video from a
board-certified doctor, and then these are 10 comments from people who have
endometriosis," you're able to understand the difference between those two
sources of information, and, sometimes, the information from the individuals
may be more valuable than the information that the doctor gave to you. But the
whole mission of this platform is to make health literacy more accessible and
to empower patients to take the information that they learn from the platform
to their own doctors to have a better informed conversation with their doctor.
Julie Rose: Dr. Erin Nance is a board-certified
orthopedic surgeon, and she's the founder and CEO of FeelBetr Health, which is
B-E-T-R, FeelBetr Health, which is that platform she was just talking about. She's
also co-host of the Medical Detectives podcast. She's on social media @littlemissdiagnosed,
and her new book is called "Little Miss Diagnosed," it's a memoir.
Dr. Nance, thanks for your time today.
Erin Nance, MD: Thank you so much, Julie. It was a
pleasure.
Julie Rose: And thank you for getting Uncomfy with us today. Have you had to admit you were wrong recently, or made a mistake and owned up to it? How did you get the nerve to do it, lean into that discomfort? I'd love to hear your story. You can email uncomfy@byu.edu or connect with us on social media to keep the conversation going. Uncomfy is a BYUradio podcast. Samuel Benson produces it, and the team includes Hyobin Kim and Sam Payne. Our theme music was composed by Kelsey Nay. I'm Julie Rose. Can't wait to get Uncomfy with you again next week.
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